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Appearances (1)
2026-03-17
Jennifer and Maya Reinhardt Share Their Journey with Cystic Fibrosis and Right to Try 2.0In the latest episode of the Health Policy Podcast, Jennifer and Maya Reinhardt discuss their personal journey with cystic fibrosis and the challenges they faced in accessing experimental treatments, specifically phage therapy. They advocate for Right to Try 2.0, emphasizing the need for expedited access to innovative therapies for patients with life-threatening conditions. The Reinhardts' experience highlights the importance of reducing bureaucratic hurdles in healthcare to improve patient outcomes.
Notable quotes
“When she was little, she looked like just a normal little kid, but she would get these lung infections.”
“I mean, the whole family was, they didn't know what was going on, what to do really.”
“I didn't have that kind of time because my lung function was, you know, every time I went to the doctor, every two, three months, my lung function was down another 3%.”
“If your doctor approves this and they're willing to help you, let's go ahead and get this treatment that's individualized for you.”
“If there's a treatment, you should be able to access it.”
“I used to be the Guinea pig and now I get to be the Guinea pig and the scientist, and it's great.”
