Organization

Patients Rising

Coverage areas

2026-07-21
Patient's Rising's Terry Wilcox: The gap between FDA approval and patient access for Alzheimer’s treatments
with Terry Wilcox
In the Health Policy Podcast episode featuring Terry Wilcox, co-founder and CEO of Patients Rising, the discussion centers on the gap between FDA approval and patient access to Alzheimer's treatments. Wilcox emphasizes the importance of early diagnosis and treatment for Alzheimer's, the challenges patients face in accessing these treatments, and the need for policy changes to improve care. She also shares personal experiences related to caregiving and the complexities of navigating healthcare for loved ones with Alzheimer's.

“If you want policy to pass, you need the right patient in front of the right legislator at the right time with the right story.”
“We do not have a cure for Alzheimer's by any stretch of the imagination, but we do have a way to slow progression, and I think that's something to be celebrated.”
“If something's not working for a patient, they're not going to take it.”
“I would do anything in my power to have gotten my parents to me a lot sooner.”
“It's difficult to keep someone with Alzheimer's safe, and there's a lot of care programs and facilities that do beautiful jobs.”
“We have the capability to care for these people, but there is a completely different facility experience for people who don't have that.”